Tuesday, 8 September 2009

Today went smoothly, this is very rare. Isobel woke at 7.30am, breakfasted, bathed and dressed by 9.30am. We were at the hospice by 10am.

Dr Sadler's secretary, Denise, 'phoned as the oncology department did not know what had happened with the neurology referral. I e-mailed her a copy of Professor Hawkes' report, which had somehow not reached them; I also explained the background to some of the comments in the report and the effect of the four days when Isobel did not take her medication. The MRI scan will apparently be forthcoming later this month. There seems to be no explanation for her deteriorating symptoms in terms of disease progression. Certainly there is no evidence (either from scans or from increasing periods of sleep) of the tumour attacking the corpus callosum or other deep brain structures which would rapidly produce a very serious problem. I collected Isobel from the hospice at 3pm. She had a good day, including a massage. Steve commented that from their point of view, Isobel did not vary much from day to day apart from her walking and balance - in contrast to the extreme variability we see at home.

Isobel's walking and balance was a little better for most of the day. Her speech was still very confused. Isobel had Chicken Kiev with citrus wedges, brocolli, sprouts, peas and onion rings for dinner, followed by rhubarb crumble. She fell asleep on the living room sofa at about 10pm.

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