Tuesday, 29 September 2009

Preparations for the trip to Maidstone started soon after 6am although I let Isobel sleep on until 7am. It was a rush to get ready and then collect Iona on the way. This was the first time Euan had come to Maidstone Hospital.

Dr Sadler had planned to send Isobel to Kings College Hospital for a psychological investigation but, after hearing what has happened over the last couple of months and speaking to Isobel for some minutes, decided this would not now be of value. Instead there will be another MRI scan followed by a further meeting with Dr Sadler. I suspect this indicates she believes tumour regrowth is occurring but I saw no point in asking her to speculate with Isobel present. The last blood test showed the level of anti-fitting drug was a little lower than expected so the intake will be slightly increased to take account of this. I think this was an acceptable outcome to the meeting, although it would have been better if the scan had been done earlier.

Seywag from the crisis team came round in the afternoon to check that Isobel was OK. We will have a meeting here at 2pm on Thursday afternoon to discuss the respite care. This maybe for two weeks instead of one. The hospice nurse will attend, the GP will "have some input" and the crisis team doctor may appear if he gets away from a previously organised meeting; I think the mental health people hope to convince the Ellenor Trust that sedation has worked so well that the hospice could cope with her.

Today Isobel's walking has been very poor again, barely able to stand at times. Her speech was moderately bad in the morning, she did not make much sense when talking to Dr Sadler; in the evening she was almost completely incomprehensible.

Isobel had fish, chips, onion rings and peas for dinner, followed by ice cream. She was asleep by 9pm.

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