This is a combined entry for Sunday and Monday.
On Sunday morning Isobel slept until about half eight. Iona came round at about half nine. Isobel's walking and balance continues to be poor, although a little better than the low point reached last week. At lunchtime Jon arrived from football, he had a good game, scoring the equaliser and setting up the winner in a 2-1 victory, he was man of the match. He plays at a fairly serious level for Crofton Albion. He and Iona were pleased that I had found out what happened to Jon's great grandmother's brother who disappeared in the 1970s - he died in 1994. Isobel was tired and after Jon and Iona left she went back to bed for a couple of hours.
We had dinner rather late, a very large beef curry; I tried a new combination of spices which turned out rather disappointing. Afterwards Isobel had rhubarb crumble and went to bed to watch television at about 10pm. In the evening Isobel's speech was very incoherent.
At 11.30pm Isobel had wet the bed in three places. Each time she had moved to a new, dry position in the bed, with the result that she had rolled off the fully protected area and the third episode had penetrated to the mattress. The bed needed cleaning and was out of action for the rest of the night, not a problem as the hospital bed downstairs was available for Isobel. Isobel refused to accept that she had wet the bed, claiming it was only sweat. She stayed upstairs while I cleaned the bed, denying that there was any problem and shouting and swearing, but eventually agreed to sleep downstairs. It was about half twelve when she came downstairs. Isobel refused to use the hospital bed and lay on the sofa covered by a throw; not sleeping but complaining that she could not sleep in her usual bed. At 1am I agreed to help her upstairs so that she could satisfy herself that the mattress was indeed wet, as she agreed to sleep downstairs once she had checked this; this was an unwise move. Upstairs Isobel completely lost control and became very abusive and violent. This was full blown dementia with no sense or coherence to her speech or actions. There was a great deal of punching, slapping and scratching. I was bitten four or five times, twice very hard. There was a pattern of about five minutes of violent activity followed by five or ten minutes of exhaustion. This continued, in the bedroom, bathroom and spare bedroom until 7am when Isobel fell asleep exhausted on the spare bedroom floor. When she awoke at 7.20 she was normal again and came downstairs for breakfast. She wet the sofa while having breakfast. Despite her activities during the night Isobel did not seem to be tired, and bathed and got ready as usual for her time at the hospice day centre. Her walking and balance was however very poor.
Iona came round during her lunch break but was not feeling very well. Soon after going back to work she was sick and was sent home. We agreed that I would bring Isobel from the hospice to have dinner with her.
At the hospice Isobel had a quiet day. She had not slept for any long period although she had dozed a bit, but had not seemed to be aware of what was going on - I think this is just the result of physical exhaustion. She had shown resistance to any attempts to assist her, although this is common at home it does not usually happen at the hospice. I took her back the car in the wheelchair, but she had a lot of trouble in helping herself get from the wheelchair into the car. I parked ten yards from Iona's door, but Isobel had difficulty putting one foot in front of the other and it took fifteen minutes to manoeuvre her into the house. It was clear that Iona would have difficulty getting her mother to the toilet, but we decided I would go home to get half an hours sleep. I collected Isobel at about half six, she had Chicken Kiev and citrus slices for dinner at Iona's. She was hardly able to walk at all, even with a lot of support. At home she had a cup of coffee and some biscuits before going to bed at about half eight.
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