Tuesday, 23 June 2009

Monday was an experimental day with the children looking after Isobel while I went to Buckinghamshire for the burial of my old friend Paul. This was also the first Monday day Isobel attended the Cottage Hospice. In principle she can now go three times a week on Monday, Tuesday and Thursday.
Although we got started early, Isobel had not had her bath when Iona arrived at 9am. She took over Isobel's preparation while I did the shopping then left for Bucks. Iona dropped Isobel off at the hospice just before 11am and was able to see Jon at home on his day off for a couple of hours. Iona and Euan collected Isobel from the hospice just before 3pm.
I got home about 6pm and we all dined on pizzas for a change. Isobel (and I) were very tired in the evening but she perked up later and demanded breakfast at 2am, but settled for coffee and biscuits. One new problem that has become apparent over the past couple of days is difficulty in sitting up, it is not clear if this is another manifestation of muscle wasting owing the the long term steroid use.

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